Re: Patient-centered medicine & user-centered design

Motivated by cost reductions and increased safety and quality, there is a
growing focus on what you describe, Hal.

I teach a course on Online Consumer
Health<http://mail.google.com/onlineconsumerhealth.com> at
Tufts University School of Medicine in which I teach my students to develop
personas, do competitive analyses, formative evaluations, etc. as part of
developing health Web sites. I teach these techniques in Web Strategies for
Health Communication <http://webstrategiesforhealth.com/> (a 1-week summer
course which is open to anyone, not just Tufts graduate students if you're
interested, Hal!)

There is a whole field of participatory
medicine<http://participatorymedicine.org/>- 2 of the people heavily
involved in this, a cancer patient
and physician, were guest lecturers in my fall course and spoke about the
advantages of partnerships that also encompass use of the Internet.

Finally, The Health Care Blog <http://www.thehealthcareblog.com/> has many
posts related to your interests.

Lisa
-- 
Lisa Gualtieri, PhD

Save the Date: July 18-23, 2010, Tufts Summer Institute on Web Strategies
for Health Communication: http://webstrategiesforhealth.com

Adjunct Clinical Professor, Tufts University School of Medicine
Blog on health: http://lisagualtieri.com

Editor-in-Chief, eLearn Magazine, http://eLearnMag.org
Blog on education: http://blog.acm.org/elearn/

Phone: 781-861-7373
Email: [email protected]
Twitter: http://twitter.com/lisagualtieri
On Mon, Jan 11, 2010 at 2:38 PM, Hal Shubin <[email protected]> wrote:

> I was talking with my primary care physician today about how
> un-patient-centered my recent hospital stay was. (See below for some
> examples.) He mentioned a seminar or class he teaches for residents about
> empathy and looking at medical care from the patient's point of view. I'm so
> glad he mentioned this because the experience made me want to find a way to
> apply what I know to fix the problem.
>
> I'm sure there's not a lot of medical literature about this. Driving away,
> I started thinking about what there is in *our* literature, and in our
> methodologies that could help him. For example, maybe the idea of personas
> would be useful: they could work together to create personas for Sally
> SeniorCitizen, Andy Appendicitis, Uncle UnknownProblems and Polly Pregnant,
> and refer to them in their discussions.
>
> Some of my consulting work has involved medical software and hardware, and
> I've done usability testing with physicians. But this is different. Have you
> done anything relevant that I could pass along? Or have any ideas that seem
> appropriate?
>
> thanks                          -- hs
>
> A few examples of how un-patient-focused my hospital stay was.
> = I didn't mind having vitals checked every four hours around the clock --
> it seems useful, and I wasn't sleeping well anyway.
> = Nurses would do something and say they'd be back in (say) 20 minutes to
> check on the outcome, but it was much longer than that.
> = Someone came in during the night and started asking questions without
> identifying himself -- how do I answer without knowing who and what he is?
> = Two teams of doctors wanted to poke, probe and interview me when I was
> just too cold and uncomfortable, so I had to ask them to leave. They said
> they'd be back soon, but it was the next day.
> = Another doctor wouldn't tell me what I should order when I was moved to a
> solid diet, he just vetoed all my suggestions; he said he'd come back later
> instead of helping me right then, but he sent a medical student three hours
> later. Etc.
>
>
> - - - - - - - - - -
> Hal Shubin  -  Interaction Design, Inc.
> 617 489 6595  -  www.user.com
>
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