Fwd: Dossier électronique de santé  : ne laissons pas la réforme aux mains des lobb yistes

Michael Parchet via gull <gull-04vmY7CpswVinyhjFObuvR+/[email protected]> Fri, 17 Apr 2026 19:44:28 +0200
Newsgroups gmane.org.user-groups.gull.general
Message-ID <[email protected]>
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<html class=3D"apple-mail-supports-explicit-dark-mode"><head><meta http-equi=
v=3D"content-type" content=3D"text/html; charset=3Dutf-8"></head><body dir=3D=
"auto"><div dir=3D"ltr"></div><div dir=3D"ltr"><br>Bonjour,</div><div dir=3D=
"ltr"><br></div><div dir=3D"ltr">En se basant sur le RGPD europ=C3=A9en, on n=
e doit pas permettre un concentement tacite du patient sur le fait d=E2=80=99=
ouvrir un dossier =C3=A9lectroniqes. Il faut d=E2=80=99abord s=E2=80=99assur=
er que toutes les donn=C3=A9es soit chiffr=C3=A9es de bout en bout en bout e=
t que pas m=E2=80=99eme la NSA, le SRC et la police ou autre autorit=C3=A9 o=
u logiciel espion tel que pegasus ne puisse casser le chiffrement de bout en=
 bout. Il n=E2=80=99est pas question de savoir si les donn=C3=A9es vont fair=
e l=E2=80=99ocre d=E2=80=99un piratage mais quand elles seront pirat=C3=A9es=
. Ainsi que sur quel serveur les donn=C3=A9es sont h=C3=A9berg=C3=A9e et dan=
s quelle pays et sous quelle l=C3=A9gislation.</div><div dir=3D"ltr">Il est c=
laire qu=E2=80=99=C3=A0 terme tous les dossiers de patients seront num=C3=A9=
ris=C3=A9e mais il faudra que le patient puisse envoyer un mail de mani=C3=A8=
re chiffr=C3=A9e de bout en bout au prestataire de soin.</div><div dir=3D"lt=
r"><br></div><div dir=3D"ltr">Je pense que ce dossier devrait =C3=AAtre trai=
t=C3=A9 par le parti h=C3=A9ros (anciennement parti pirate) ou des expert un=
iversitaire informatique comme ceux de l=E2=80=99=C3=A9ph=C3=A9m=C3=A9ride s=
ans oubli=C3=A9 les personne faisant parti du fil (groupement suisse du logi=
ciel libre)</div><div dir=3D"ltr"><br></div><div dir=3D"ltr">J=E2=80=99atten=
ds avec int=C3=A9r=C3=AAt vos avis</div><div dir=3D"ltr"><br></div><div dir=3D=
"ltr">Meilleur Salutations</div><div dir=3D"ltr"><br></div><div dir=3D"ltr">=
mparchet</div><div dir=3D"ltr"><br></div><div dir=3D"ltr"></div><div dir=3D"=
ltr"></div><div dir=3D"ltr">&nbsp;<br>D=C3=A9but du message transf=C3=A9r=C3=
=A9&nbsp;:<br><br></div><blockquote type=3D"cite"><div dir=3D"ltr"><b>De:</b=
> PS Suisse M=C3=A9dias &lt;[email protected]&gt;<br><b>Date:</b> 17 avril 2=
026 =C3=A0 16:57:20 UTC+2<br><b>=C3=80:</b> [email protected]<br><b>Objet:</b=
> <b>Dossier =C3=A9lectronique de sant=C3=A9=E2=80=89: ne laissons pas la r=C3=
=A9forme aux mains des lobbyistes</b><br><br></div></blockquote><blockquote t=
ype=3D"cite"><div dir=3D"ltr">=EF=BB=BF

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          <!--#html#--><h1 class=3D"false" style=3D"text-align: left;">Dossi=
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    <!--#/loopitem#--> <!--#loopitem name=3D"Pers=C3=B6nliche Ansprache"#-->=

<table border=3D"0" cellpadding=3D"0" cellspacing=3D"0" width=3D"100%" style=
=3D"background-color: #FFFFFF; ;;;width: 100%; table-layout: fixed; -webkit-=
text-size-adjust: 100%; -ms-text-size-adjust: 100%;" class=3D"bgcolor-1" dat=
a-style=3D"background-color:inherit" data-limit-to=3D"background,background-=
color" data-name=3D"Outer Container">
<tbody>
<tr>
<td style=3D"font-size: 0px;"><!-- [if mso | IE]><table align=3D"center" bor=
der=3D"0" cellpadding=3D"0" cellspacing=3D"0" class=3D"" role=3D"presentatio=
n" style=3D"" width=3D"600" gc-width-fix=3D".cr-maxwidth:max-width" ><tr><td=
 style=3D"line-height:0px;font-size:0px;mso-line-height-rule:exactly;"><![en=
dif]-->
<div class=3D"cr-maxwidth" style=3D"max-width: 600px; ;;;margin: 0px auto;">=

<table role=3D"presentation" align=3D"center" border=3D"0" cellpadding=3D"0"=
 cellspacing=3D"0" style=3D"max-width: 600px; ;;;background-color: #FFFFFF; ;=
;;width: 100%;" class=3D"cr-maxwidth bgcolor-2" data-style=3D"background-col=
or:inherit" data-limit-to=3D"background,background-color" data-name=3D"Conta=
iner">
<tbody>
<tr>
<td style=3D"direction: ltr; font-size: 0px; text-align: center;"><!-- [if m=
so | IE]><table role=3D"presentation" border=3D"0" cellpadding=3D"0" cellspa=
cing=3D"0" width=3D"100%"><tr><td><![endif]-->
<table cellspacing=3D"0" cellpadding=3D"0" width=3D"100%">
<tbody>
<tr>
<td class=3D"cr-text color-2" data-name=3D"Text" style=3D"color: #242424; ;;=
;font-family: Helvetica, Arial, sans-serif; font-size: 16px; ;;;padding:0px 0=
px 0px 20px;text-align:center;" data-style=3D"padding:inherit;padding:inheri=
t;color:inherit;" data-limit-to=3D"padding,color"><!--#html#--><p class=3D"f=
alse" style=3D"text-align: justify;"><strong class=3D"false">Le secteur de l=
a sant=C3=A9 est sur le point de franchir une =C3=A9tape importante vers la n=
um=C3=A9risation=E2=80=89: le nouveau dossier =C3=A9lectronique de sant=C3=A9=
 (DES) devrait remplacer le dossier =C3=A9lectronique du patient, qui a =C3=A9=
chou=C3=A9. La Commission de la s=C3=A9curit=C3=A9 sociale et de la sant=C3=A9=
 publique du Conseil national (CSSS-N) a d=C3=A9sormais entam=C3=A9 l=E2=80=99=
examen du projet. Pour le PS, une chose est claire=E2=80=89: le DES doit am=C3=
=A9liorer la qualit=C3=A9 des traitements, laisser la souverainet=C3=A9 des d=
onn=C3=A9es aux patient-es ainsi que renforcer la protection des donn=C3=A9e=
s =E2=80=94 et ne doit pas =C3=AAtre =C3=A9dulcor=C3=A9 par les lobbyistes d=
u secteur de la sant=C3=A9.</strong></p><!--#/html#--></td>
</tr>
</tbody>
</table>
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</tr>
</tbody>
</table>
</div>
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</tr>
</tbody>
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        <table border=3D"0" cellpadding=3D"0" cellspacing=3D"0" width=3D"100=
%" style=3D"background-color: #FFFFFF; ;;;width: 100%; table-layout: fixed; -=
webkit-text-size-adjust: 100%; -ms-text-size-adjust: 100%; " class=3D"bgcolo=
r-1 editable" data-style=3D"background-color:inherit" data-limit-to=3D"backg=
round,background-color" data-name=3D"Outer Container">
            <tbody><tr>
                <td style=3D"font-size: 0px; ">
                    <!--[if mso | IE]><table align=3D"center" border=3D"0" c=
ellpadding=3D"0" cellspacing=3D"0" class=3D"" role=3D"presentation" style=3D=
"" width=3D"600" gc-width-fix=3D".cr-maxwidth:max-width" ><tr><td style=3D"l=
ine-height:0px;font-size:0px;mso-line-height-rule:exactly;"><![endif]-->
                    <div class=3D"cr-maxwidth" style=3D"max-width: 600px; ;;=
;margin:0px auto;">

                        <table align=3D"center" border=3D"0" cellpadding=3D"=
0" cellspacing=3D"0" style=3D"max-width: 600px; ;;;background-color: #FFFFFF=
; ;;;width:100%; " class=3D"cr-maxwidth bgcolor-2 editable" data-style=3D"ba=
ckground-color:inherit" data-limit-to=3D"background,background-color" data-n=
ame=3D"Container">
                            <tbody>
                            <tr>
                                <td style=3D"direction:ltr;font-size:0px;tex=
t-align:center;">
                                    <!--[if mso | IE]><table role=3D"present=
ation" border=3D"0" cellpadding=3D"0" cellspacing=3D"0" width=3D"100%"><tr><=
td><![endif]-->
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        <table cellspacing=3D"0" cellpadding=3D"0" width=3D"100%"><tbody><tr=
><td class=3D"cr-text color-2" style=3D"color: #242424; ;;;font-family: Helv=
etica, Arial, sans-serif; font-size: 16px; ;;;padding:10px 0px 10px 20px;" d=
ata-style=3D"padding:inherit;color:inherit;" data-name=3D"Text">
            <!--#html#--><div align=3D"left">
<p class=3D"false" style=3D"text-align: justify;">=C2=AB=E2=80=89Aujourd=E2=80=
=99hui, les patient-es repartent de z=C3=A9ro =C3=A0 chaque changement de m=C3=
=A9decin, les r=C3=A9sultats d=E2=80=99examens se perdent ou sont inutilemen=
t refaits=E2=80=89=C2=BB, explique la conseill=C3=A8re nationale socialiste B=
rigitte Crottaz. =C2=AB=E2=80=89Le dossier =C3=A9lectronique de sant=C3=A9 d=
onne aux personnes la ma=C3=AEtrise de leurs donn=C3=A9es de sant=C3=A9 et r=
end les traitements plus s=C3=BBrs. Le Parlement doit d=C3=A9sormais faire a=
vancer cette r=C3=A9forme avec d=C3=A9termination.=E2=80=89=C2=BB</p>
<p class=3D"false" style=3D"text-align: justify;">Le projet du Conseil f=C3=A9=
d=C3=A9ral a tir=C3=A9 les le=C3=A7ons des erreurs commises dans le dossier =C3=
=A9lectronique du patient. Il met notamment fin au caract=C3=A8re facultatif=
 de l=E2=80=99infrastructure centrale g=C3=A9r=C3=A9e par la Conf=C3=A9d=C3=A9=
ration, qui doit instaurer la confiance, et qui sera obligatoire pour tous l=
es prestataires. La population sera impliqu=C3=A9e via un mod=C3=A8le d=E2=80=
=99opt-out et le financement sera r=C3=A9organis=C3=A9. =C2=AB=E2=80=89Ainsi=
, au lieu d=E2=80=99un simple archivage de documents, on cr=C3=A9e un v=C3=A9=
ritable outil de travail qui =C3=A9vite les doublons et rend les soins plus e=
fficaces=E2=80=89=C2=BB, explique Brigitte Crottaz.</p>
<p class=3D"false" style=3D"text-align: justify;">Au cours des prochaines d=C3=
=A9lib=C3=A9rations, le PS s=E2=80=99engagera pour que la protection des don=
n=C3=A9es reste haute, que la souverainet=C3=A9 sur les donn=C3=A9es revienn=
e clairement aux patient-es et que le dossier =C3=A9lectronique de sant=C3=A9=
 (DES) garantisse davantage de transparence et apporte un changement tangibl=
e dans la vie quotidienne de la population. Une chose est tout aussi claire=E2=
=80=89: le programme de num=C3=A9risation DigiSant=C3=A9 ne doit pas =C3=AAt=
re sacrifi=C3=A9 au nom des =C3=A9conomies. Sinon, le DES restera lui aussi u=
ne promesse en l=E2=80=99air.</p>
</div><!--#/html#-->
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ndif]-->
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        <table border=3D"0" cellpadding=3D"0" cellspacing=3D"0" width=3D"100=
%" style=3D"background-color: #FFFFFF; ;;;width: 100%; table-layout: fixed; -=
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r-1 editable" data-style=3D"background-color:inherit" data-limit-to=3D"backg=
round,background-color" data-name=3D"Outer Container">
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ine-height:0px;font-size:0px;mso-line-height-rule:exactly;"><![endif]-->
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;margin:0px auto;">

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0" cellspacing=3D"0" style=3D"max-width: 600px; ;;;background-color: #FFFFFF=
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ame=3D"Container">
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t-align:center;">
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ation" border=3D"0" cellpadding=3D"0" cellspacing=3D"0" width=3D"100%"><tr><=
td><![endif]-->
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presentation" style=3D"vertical-align:top;" width=3D"100%">
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        <!--[if mso]><td style=3D"width: 50%; vertical-align: top"><![endif]=
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ak-word;">
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><td class=3D"cr-text color-2 editable" style=3D"color: #242424; ;;;font-fam=
ily: Helvetica, Arial, sans-serif; font-size: 16px; ;;;padding:10px 20px;" d=
ata-style=3D"padding:inherit;color:inherit;" data-name=3D"Title">
          <!--#html name=3D"title"#--><h3>=C2=AB=E2=80=89Le dossier =C3=A9le=
ctronique de sant=C3=A9 donne aux personnes la ma=C3=AEtrise de leurs donn=C3=
=A9es de sant=C3=A9 et rend les traitements plus s=C3=BBrs. =C2=BB</h3><!--#=
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          <!--#html name=3D"description"#--><strong class=3D"false">Brigitte=
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        <table cellspacing=3D"0" cellpadding=3D"0" width=3D"100%"><tbody><tr=
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"" width=3D"600" gc-width-fix=3D".cr-maxwidth:max-width" ><tr><td style=3D"l=
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ame=3D"Container">
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t-align:center;">
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tr><td class=3D"" style=3D"margin:0px;" data-style=3D"padding:inherit;" data=
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le><!--#/spacer#-->
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ine-height:0px;font-size:0px;mso-line-height-rule:exactly;"><![endif]-->
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; ;;;background-color:#EBEBEB;width:100%;" class=3D"cr-maxwidth bgcolor-2 ed=
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background-color" data-name=3D"Container">
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t-align:center;">
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><td class=3D"cr-text color-2" style=3D"color: #242424; ;;;font-family: Helv=
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            <!--#html#--><h3 class=3D"false">Informations compl=C3=A9mentair=
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        <table cellspacing=3D"0" cellpadding=3D"0" width=3D"100%"><tbody><tr=
><td class=3D"cr-text color-2" style=3D"color: #242424; ;;;font-family: Helv=
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ta-style=3D"padding:inherit;color:inherit;" data-name=3D"Text">
            <!--#html#--><ul class=3D"false">
<li style=3D"word-spacing: normal; text-align: left;"><strong>Tom Cassee</st=
rong>, secr=C3=A9taire g=C3=A9n=C3=A9ral <br>079 755 21 24</li>
<li style=3D"word-spacing: normal; text-align: left;"><strong>Elisa Jeannere=
t</strong>, responsable de projets m=C3=A9dias<br>031 329 69 80</li>
</ul><!--#/html#-->
          </td></tr></tbody></table>
       =20
                                    <!--[if mso | IE]></td></tr></table><![e=
ndif]-->
                                </td>
                            </tr>
                            </tbody>
                        </table>

                    </div>
                    <!--[if mso | IE]></td></tr></table><![endif]-->

                </td>
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        <table border=3D"0" cellpadding=3D"0" cellspacing=3D"0" width=3D"100=
%" style=3D"background-color: #FFFFFF; ;;;width: 100%; table-layout: fixed; -=
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round,background-color" data-name=3D"Outer Container">
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                    <!--[if mso | IE]><table align=3D"center" border=3D"0" c=
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"" width=3D"600" gc-width-fix=3D".cr-maxwidth:max-width" ><tr><td style=3D"l=
ine-height:0px;font-size:0px;mso-line-height-rule:exactly;"><![endif]-->
                    <div class=3D"cr-maxwidth" style=3D"max-width: 600px; ;;=
;margin:0px auto;">

                        <table align=3D"center" border=3D"0" cellpadding=3D"=
0" cellspacing=3D"0" style=3D"max-width: 600px; ;;;background-color: #FFFFFF=
; ;;;width:100%; " class=3D"cr-maxwidth bgcolor-2 editable" data-style=3D"ba=
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                                    <!--[if mso | IE]><table role=3D"present=
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          <!--#spacer size=3D"20"#--><table width=3D"100%" cellpadding=3D"0"=
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ze:0px!important;height:20px" height=3D"20">=E2=80=8A</td></tr></tbody></tab=
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       =20
                                    <!--[if mso | IE]></td></tr></table><![e=
ndif]-->
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                            </tbody>
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                    </div>
                    <!--[if mso | IE]></td></tr></table><![endif]-->

                </td>
            </tr>
        </tbody></table>
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     =20
       =20
   =20
       =20
     =20
        <table border=3D"0" cellpadding=3D"0" cellspacing=3D"0" width=3D"100=
%" style=3D"background-color: #FFFFFF; ;;;width: 100%; table-layout: fixed; -=
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ation" border=3D"0" cellpadding=3D"0" cellspacing=3D"0" width=3D"100%"><tr><=
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                                   =20
        <table cellspacing=3D"0" cellpadding=3D"0" width=3D"100%"><tbody><tr=
><td class=3D"cr-text color-2" style=3D"color: #242424; ;;;font-family: Helv=
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span style=3D"font-size: 14px;"><a href=3D"https://427412.eu2.cleverreach.co=
m/c/115738678/760637b912cf-tdn87j" style=3D"color: #E4002B; ;;;"> Communiqu=C3=
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          </td></tr></tbody></table>
       =20
                                    <!--[if mso | IE]></td></tr></table><![e=
ndif]-->
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      <!--#/loopitem#-->  <!--#loopitem#-->
       =20
       =20
   =20
       =20
        <table border=3D"0" cellpadding=3D"0" cellspacing=3D"0" width=3D"100=
%" style=3D"background-color: #FFFFFF; ;;;width: 100%; table-layout: fixed; -=
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round,background-color" data-name=3D"Outer Container">
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0" cellspacing=3D"0" style=3D"max-width: 600px; ;;;background-color: #FFFFFF=
; ;;;width:100%; " class=3D"cr-maxwidth bgcolor-2 editable" data-style=3D"ba=
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ame=3D"Container">
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t-align:center;">
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                                   =20
        <table cellspacing=3D"0" cellpadding=3D"0" width=3D"100%"><tbody><tr=
><td class=3D"" style=3D"padding:10px 20px;" data-style=3D"padding:inherit;"=
 data-name=3D"Social">
          <!--#social order=3D"twitter,facebook,instagram,youtube,linkedin,p=
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ps://www.instagram.com/pssuisse" facebook=3D"https://www.facebook.com/pssuis=
se" bluesky=3D"https://bsky.app/profile/pssuisse.ch" mastodon=3D"https://mas=
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		<a href=3D"https://427412.eu2.cleverreach.com/c/115738679/7=
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		<a href=3D"https://427412.eu2.cleverreach.com/c/115738680/7=
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cial=3D"instagram" target=3D"_blank" style=3D"color: #E4002B; ;;;display: in=
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			<img src=3D"https://cloud-files.crsend.com/img/soci=
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adding: 0; display: inline-block;" alt=3D"Instagram Nutzername" data-unique-=
identifier=3D"">
		</a>
		<a href=3D"https://427412.eu2.cleverreach.com/c/115738681/7=
60637b912cf-tdn87j" data-link=3D"https://mastodon.social/@pssuisse" data-soc=
ial=3D"mastodon" target=3D"_blank" style=3D"color: #E4002B; ;;;display: inli=
ne-block; line-height: 0px;">
			<img src=3D"https://cloud-files.crsend.com/img/soci=
al/rounded/black/mastodon.png" width=3D"42" style=3D"border: 0; margin: 0; p=
adding: 0; display: inline-block;" alt=3D"Mastodon Nutzername" data-unique-i=
dentifier=3D"">
		</a>
		<a href=3D"https://427412.eu2.cleverreach.com/c/115738682/7=
60637b912cf-tdn87j" data-link=3D"https://bsky.app/profile/pssuisse.ch" data-=
social=3D"bluesky" target=3D"_blank" style=3D"color: #E4002B; ;;;display: in=
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			<img src=3D"https://cloud-files.crsend.com/img/soci=
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dding: 0; display: inline-block;" alt=3D"Bluesky Nutzername" data-unique-ide=
ntifier=3D"">
		</a></td></tr></tbody></table>
			<!--#/social#-->
      </td></tr></tbody></table>
       =20
                                    <!--[if mso | IE]></td></tr></table><![e=
ndif]-->
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                            </tr>
                            </tbody>
                        </table>

                    </div>
                    <!--[if mso | IE]></td></tr></table><![endif]-->

                </td>
            </tr>
        </tbody></table>
   =20
  <!--#/loopitem#-->              <!--#loopitem#-->
<table border=3D"0" cellpadding=3D"0" cellspacing=3D"0" width=3D"100%" style=
=3D"background-color: #FFFFFF; ;;;width: 100%; table-layout: fixed; -webkit-=
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a-style=3D"background-color:inherit" data-limit-to=3D"background,background-=
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<div class=3D"cr-maxwidth" style=3D"max-width: 600px; ;;;margin: 0px auto;">=

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<table cellspacing=3D"0" cellpadding=3D"0" width=3D"100%">
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<table role=3D"presentation" class=3D"cred-divider" border=3D"0" cellpadding=
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</tr>
<tr>
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</tr>
</tbody>
</table>
</td>
</tr>
</tbody>
</table>
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</tr>
</tbody>
</table>
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</tr>
</tbody>
</table>
</div>
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</tr>
</tbody>
</table>
<!--#/loopitem#-->               <!-- --------------------------------------=
---------------- --><!--#/loop#-->
<table border=3D"0" cellpadding=3D"0" cellspacing=3D"0" width=3D"100%" style=
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<div class=3D"cr-text color-1" style=3D"color: #242424; ;;;font-family: Helv=
etica, Arial, sans-serif; font-size: 16px; ;;;color: #242424; ;;;font-family=
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family: Helvetica, Arial, sans-serif; font-size: 16px; ;;;color: #242424; ;;=
;font-family: Helvetica, Arial, sans-serif; font-size: 16px; ;;;color: #2424=
24; ;;;font-family: Helvetica, Arial, sans-serif; font-size: 16px; ;;;color:=
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nt-size: 16px; ;;;color: #242424; ;;;font-family: Helvetica, Arial, sans-ser=
if; font-size: 16px; ;;;color: #242424; ;;;font-family: Helvetica, Arial, sa=
ns-serif; font-size: 16px; ;;;color: #242424; ;;;font-family: Helvetica, Ari=
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</tr>
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<table role=3D"presentation" border=3D"0" cellpadding=3D"0" cellspacing=3D"0=
" width=3D"100%" style=3D"background-color: #FFFFFF; ;;;width: 100%; table-l=
ayout: fixed; -webkit-text-size-adjust: 100%; -ms-text-size-adjust: 100%;" c=
lass=3D"bgcolor-1" data-style=3D"background-color:inherit" data-limit-to=3D"=
background,background-color" data-name=3D"Outer Container">
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<td style=3D"font-size: 0px;"><!-- [if mso | IE]><table align=3D"center" bor=
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dif]-->
<div class=3D"cr-maxwidth" style=3D"max-width: 600px; ;;;margin: 0px auto;">=

<table role=3D"presentation" align=3D"center" border=3D"0" cellpadding=3D"0"=
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;;width: 100%;" class=3D"cr-maxwidth bgcolor-1" data-style=3D"background-col=
or:inherit" data-limit-to=3D"background,background-color" data-name=3D"Conta=
iner">
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<td style=3D"direction: ltr; font-size: 0px; text-align: center;"><!-- [if m=
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etica, Arial, sans-serif; font-size: 16px; ;;;text-align: center; font-size:=
 10px; margin: 10px 20px;"><!--#aboutus custom=3D"true" selected=3D"Parti so=
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